Iowa State University Extension and Outreach delivers ‘A Journey Through Parkinson’s Disease’ to Iowans and others
AMES, Iowa – Parkinson’s disease affects millions of people worldwide, bringing challenges not only to those diagnosed but also to their families and caregivers. Addressing these challenges requires support, education and resources that empower individuals to live fulfilling lives.
That’s why, for more than five years, Iowa State University Extension and Outreach has been delivering “A Journey Through Parkinson’s Disease,” an educational series to guide participants through the complexities of this progressive neurodegenerative disease.
“We now have reached over 1,000 participants through ‘A Journey Through Parkinson’s Disease.’ This educational series has been a beacon of hope for many in Iowa and across the country,” said Leah Brooke, a health and human sciences educator who leads the program team.
Improving quality of life with support and education
The program began with a mission to provide support and education to individuals living with Parkinson’s Disease, their caregivers and healthcare professionals, noted Elizabeth Stegemoller, associate professor in kinesiology, who conducts research on slowing the progression of the disease.
“We educate participants on the disease, offer strategies for managing its symptoms and provide opportunities for people to connect with others facing similar challenges,” Stegemoller said.
The goal is simple yet profound: to improve the quality of life for those affected by Parkinson’s disease by providing relevant, practical information and fostering a supportive community. The program provides participants with the tools and knowledge they need to better understand Parkinson’s disease and navigate its impact on daily life.
The 1,000-participant mark is a significant milestone for ISU Extension and Outreach, Brooke said. It reflects not only the program’s growth and reach but also the increasing demand for support and information about Parkinson’s disease.
“The program has been instrumental in raising awareness, and this milestone underscores the importance of ongoing education. Reaching 1,000 participants is a testament to the growing recognition of the challenges associated with Parkinson’s disease and the desire for resources that can help individuals live full, happy lives,” Brooke said. “This achievement reflects the program’s dedication to providing quality education and fostering a sense of community among those impacted by the disease.”
Over the years, the program has included a variety of virtual and in-person educational offerings, covering topics such as:
- Understanding Parkinson’s disease. Participants gain in-depth information about recognizing the symptoms and seeking medical care. They also learn what to expect when visiting a neurologist and receiving a diagnosis.
- Causes and treatment. Participants learn about the causes and the science behind Parkinson’s disease, as well as the treatment options.
- Physical activity and wellness. Participants learn about alternatives for therapies and at-home activities that can help manage symptoms and improve quality of life.
Fostering a sense of community
“The feedback from participants has been overwhelmingly positive. Many have praised the program for its comprehensive approach, which not only provides valuable medical and scientific information but also emphasizes the emotional and psychological aspects of living with Parkinson’s disease. For many, the program has been a lifeline, offering not just education, but a sense of belonging to a community that understands their struggles,” Brooke explained.
Testimonies from participants highlight how the program has changed their lives. One caregiver said the knowledge and coping strategies gained through the program helped them become a more effective and empathetic caregiver. Another participant, newly diagnosed with Parkinson’s, expressed how the program helped them understand the disease better, increasing confidence and clarity in managing symptoms.
“Reaching the milestone of 1,000 participants is a stepping stone toward further growth and innovation in the program. ISU Extension and Outreach is committed to continuing its efforts to expand its reach, refine its offerings and adapt to the evolving needs of those affected by Parkinson’s disease,” Brooke said.
As the program moves forward, it remains focused on its mission: to empower those living with Parkinson’s disease and to ensure that every participant knows they are not alone in their journey.
“We want to ensure that individuals and families affected by this challenging disease receive the information, resources and emotional support they need to navigate their journey with confidence,” Brooke said.
Upcoming in-person and virtual offerings of “A Journey Through Parkinson’s Disease,” as well as outreach and research opportunities, are listed on the Health and Human Sciences Extension and Outreach website. For more information about the program, contact Leah Brooke, lbrooke@iastate.edu. To learn about research opportunities, contact Elizabeth Stegemoller, esteg@iastate.edu.
Shareable photo: Participants in “A Journey Through Parkinson’s Disease” workshop
